Lets start off by saying it has been a difficult and challenging year with cancer. We have had 4 rounds of radiation in a four month period. I received a Leptomeningeal diagnosis (which means the cancer is in the fluid of my spine and brain). I received whole brain radiation, which brought me some relief. Due to the Leptomeningeal disease I was having trouble with my speech, swallow and balance. The radiation helped everything.
I am currently at home with open hospice. Right now they only have to be here once a week, I am currently I am on steroids and pain pills when needed. My weight has stabilized, I lost about 25 lbs or so, which I kinda needed for a few years. The steroids also help the appetite and bone. So I am in almost no pain. We have a plan in place that seems to be working. My priest Father Eric from our local church St Michaels has been able to come over on a weekly basis and help work our faith based spiritual plan. We will continue to be filled with hope and inspiritation. We also understand it is the spine, lungs, liver, and brain. I am crazy enough to believe there is still hope.
I need to thank my friends, family, daughter and wife. Without them I couldn’t have fought this fight.
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